Team Leo 2018

Saturday, April 7th, 11-2 | Liberty Station, San Diego

We’ll meet at the docks adjacent to Moniker Commons (2869 Historic Decatur Road), take a beautiful one mile walk (kids are welcome to bring bikes and scooters!), and then meet for lunch, a raffle, and a time for us to share a bit of our story on the patio at Moniker General (2860 Sims Road).

Please register here.

 


 

What is Duchenne Muscular Dystrophy?

A brief description from Parent Project Muscular Dystrophy, which has been an incredible resource for our family.

“Duchenne muscular dystrophy is the most common fatal genetic disorder diagnosed in childhood, affecting approximately 1 in every 3,500 live male births. Because the Duchenne gene is found on the X-chromosome, it primarily affects boys; however, it occurs across all races and cultures.

Duchenne results in progressive loss of strength and is caused by a mutation in the gene that encodes for dystrophin. Because dystrophin is absent, the muscle cells are easily damaged. The progressive muscle weakness leads to serious medical problems, particularly issues relating to the heart and lungs. Young men with Duchenne typically live into their late twenties.

Duchenne can be passed from parent to child, but approximately 35% of cases occur because of a random spontaneous mutation. In other words, it can affect anyone. Although there are medical treatments that may help slow its progression, there is currently no cure for Duchenne.”

 


 
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